01-03-2014, 04:16 PM
Read more: Excelsior College Student with Advanced ALS Presented with Special Graduation Ceremony (Alicia Jacobs, Excelsior Life, January 3, 2013)
Alicia Jacobs, for Excelsior Life Wrote:[Ron] Miller, a 46-year-old ventilator-assisted resident of Lake Taylor Transitional Care Hospital, is completely paralyzed from the nose down and has been living with ALS (Lou Gehrigâs disease) for the last 14 years. Miller could not travel to [his college] graduation, so the graduation, with full pomp and circumstance, came to him.
Miller first learned of Excelsior [College] through one of his Registered Nurses (RNs), Maria Burkemper, a graduate of the College. He used eye-gaze computer technology to take classes and complete his degree. A positive role model for many, he doesnât let life circumstances get in his way. He makes the best of the cards he is dealt. His motto is âI may have ALS, but it does not have me.â
Miller shared via his computer, âWhen I started using an eye gaze computer I found that it reopened doors that had been long closed by ALS. Going back to school for me was driven by several things. First, it was unfinished business. I had started college over twenty years ago but let life get in the way. Second, I decided many years ago that ALS would be just part of my life and not my whole life. I found that I could still make a difference by raising awareness and sharing my experiences with others dealing with the disease. I have always been an advocate for living with ALS instead of dying from it. My success in school helps me show others that itâs possible despite the challenges of ALS.â
Today, Congressman Scott Rigell, (R ) VA-02, provided a âcommencement addressâ and was joined by President John Ebersole of Excelsior College, members of the collegeâs board of trustees, and Thomas J. Orsini, President/CEO of Lake Taylor Transitional Care Hospital.